Epithelial Adhesion - Patient Associations

AUSTRIA

DEBRA Austria
Am Heumarkt 27/1
1030 Wien
Austria
Rainer Riedl
rainer.riedl@debra-austria.org

Website: www.schmetterlingskinder.at, www.eb-house.org

BELGIUM

DEBRA Belgium
rue Piralewe 1
4600 Lanaye
Belgium
Stief Dirckx
Ingrid Jageneau
info@debra-belgium.org

Website: www.debra-belgium.org

CROATIA

DEBRA Croatia
Prilaz Gjure Deželica 30
10 000 Zagreb
Croatia
Vlasta Zmazek
vlasta@debra-croatia.com

Website: www.debra-croatia.com

CZECH REPUBLIC

DEBRA Czech Republic
Department of Pediatric Dermatology The First Pediatric Clinic, University Hospital Brno, Cernopolni 9
625 00 Brno
Czech Republic
Alice Salamonová
Website: alice.salamanova@debra-cz.org, info@debra-cz.org

FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi
, toimisto@iholiitto.fi
Website: www.iholiitto.fi

FRANCE

DEBRA France (Dystrophique Épidermolyse Bulleuse - Recherche, Association)
c/o Mutuelle du Midi
16, La Canebière
BP 31866
13221 Marseille cedex 01
France
Guy Verdot, president
Mireille Nistasos, administrative secretary
mireille.nistasos@ag2rlamondiale.fr

Website : http://www.debra.fr

GERMANY

I.E.B.-DEBRA Germany
Mühlweg 23
Biedenkopf
Germany
D-35216
Netty Müller-Grosse
mueller-grosse@t-online.de

Website: www.ieb-debra.de

HUNGARY

DEBRA Hungary
Maria u 41
Budapest
Hungary
H-1085
Prof. Sarolta Kárpáti
Orsolya Mesitsne Varga
karsar@bor.sote.hu
mesitsorsi@freemail.hu
Website: www.debra.hu

IRELAND

DEBRA Ireland
La Touche House
1 Grove Road
Rathmines
Dublin 6
Ireland
Chairperson: Colm Darling
CEO: Jimmy Fearon
info@debraireland.org

Website: www.debraireland.org

ITALY

DEBRA Italia Onlus-Associazione per la ricerca sull'Epidermolisi Bollosa Distrofica
Via P. Mascagni 152-00199; Ufficio Via Arno 96-00198 Roma
00198 Roma
Italia
Paola Zotti
paola.zotti@libero.it

Website: www.debraitalia.org


"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org

Website: www.lemalattierare.org

NORWAY

DEBRA Norway
Violveien 10D
Hakadal
Norway
1487
Phone +4745221884
Heidi Ellingsen Silseth
Website: www.debra.no

RUMANIA

DEBRA Rumania
Nicopole Street No 43-45
Brasov
Sanda Florian
sandaflorian.@yahoo.com

SPAIN

The Spanish Epidermolysis Bullosa Association
c/Real, Conjunto Puertogolf, blq 4, 1ºC, 29660 Nueva Andalucía
29660 Marbella, Málaga
Spain
Nieves Montero
Evanina Makow
aebe@aebe-debra.org

Website: www.aebe-debra.org

SWEDEN

Svenska Epidermolysis bullosa föreningen
Debra Sweden
Monica Wittboldt
Tvillinggatan 1 A
431 43 Mölndal
monica.wittboldt@glocalnet.net

Website: www.debra-sweden.org

SWITZERLAND

DEBRA Switzerland
Birkenweg 102
CH-3123 Belp
Tanja Pauli
Phone ++ 41 (0)31 879 14 88
Website: http://www.debra-ch.org, www.schmetterlingskinder.ch

THE NETHERLANDS

DEBRA Netherlands
Postbus 3160
3760 DD Soest
Netherlands
Yvonne Westheide-Sellies
info@debra.nl

Website: www.debra.nl

UNITED KINGDOM

DEBRA
Debra House, 13 Wellington Business Park, Dukes Ride
RG45 6LS Crowthorne
UK
John Dart
john.dart@debra.org.uk
, debra@debra.org.uk
Website: www.debra.org.uk

EUROPE

DEBRA
Debra House, 13 Wellington Business Park, Dukes Ride
RG45 6LS Crowthorne
UK
John Dart
john.dart@debra.org

Website: www.debra-international.org