Ectodermal Dysplasia-Pure Hair and Nail - Patient Associations

AUSTRIA

Selbsthilfegruppe Ektodermale Dysplasie
Pantlitschkogasse 5
1230 Wien
Austria
Ms. Ulrike Holzer
tuli.h@gmx.at
Website: http://www.ektodermale-dysplasie.de/

CANADA

Canadian Ectodermal Dysplasia Syndromes Association
3-247 Barr St.
K7V 1J6 RENFREW
00520 Ontario
Canada
Ms. Meghan J. Howard
meghan@ectodermaldysplasia.ca

FRANCE

Association Fran├žaise des Dysplasies Ectodermiques
3 Rue d'Alsace-Lorraine
92100 Boulogne
FRANCE
Ms. Olivia Niclas
president@afde.net

ITALY

A.N.D.E. Associazione Nazionale Displasia Ectodermica
Via Cascina Fidelina, 19
20061 Carugate (MI)
Italia
Giulia Fedele Kleemann
segreteria@assoande.it
Website: http://www.assoande.it/

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org

Website: http://www.lemalattierare.org/

NETHERLAND

Ectodermal Dysplasia Netherlands
Aernout Drostkade 30
Gouda
The Netherlands
2802 TN
Inge Haan
Website: http://www.ednl.webklik.nl

TURKEY

Ectodermal Dysplasia Group
University of Dicle, Faculty of Dentistry and Medicine
Diyarbakir
21280 Turkey
Izzet Yavuz
iyavuz@dicle.edu.tr
, izzetyavuz@hotmail.com
Website: http://www.ektodermaldisplazi.com/

UNITED KINGDOM

Ectodermal Dysplasia Society
108 Charlton Lane
Cheltenham, Glos.
England
GL53 9EA
Diana Perry
Sue Atkins
diana@ectodermaldysplasia.org
Website: http://www.ectodermaldysplasia.org/