Ehlers-Danlos Syndrome, Hypermobility Type - Clinical Trials

Title: Mind-Body Therapy for Pain in Ehlers-Danlos Syndrome

This study has been completed!
Conditions: Ehlers-Danlos syndrome
Interventions: Mind-body therapy
URL: http://www.clinicaltrials.gov/ct2/show/NCT00001966

Title: Head Circumference Growth in Children With Ehlers-Danlos Syndrome Who Develop Dysautonomia Later in Life

Recruitment: Status unknown
Conditions: Ehlers-Danlos syndrome
Interventions: Observational study
URL: http://www.clinicaltrials.gov/ct2/show/NCT01367977

Title: Celiprolol in Patients With Ehlers-Danlos Syndrome, Vascular Type

This study has been completed!
Conditions: Ehlers-Danlos syndrome type IV
Interventions: Drug: celiprolol; Drug: Control
URL: http://www.clinicaltrials.gov/ct2/show/NCT00190411

Title: Riboflavin Corneal Crosslinking for Brittle Cornea Syndrome and Ehlers-Danlos Syndrome Type VI

Recruitment: Enrolling participants by invitation only
Conditions: Brittle Cornea Syndrome; Ehlers-Danlos Syndrome Type 6
Interventions: Drug: Riboflavin; Device: Kera-X
URL: http://www.clinicaltrials.gov/ct2/show/NCT01307527

Title: Vascular Fundus Changes in Patients With High Probability of Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Recruitment: The study is ongoing, but not recruiting participants.
Conditions: Ehlers-Danlos Syndrome; Multiple Sclerosis
Interventions: Observational study
URL: http://www.clinicaltrials.gov/ct2/show/NCT01356134

Title: National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC)

Recruitment: The study is ongoing, but not recruiting participants.
Conditions: Marfan Syndrome; Turner Syndrome; Ehlers-Danlos Syndrome; Loeys-Dietz Syndrome; FBN1, TGFBR1, TGFBR2, ACTA2 or MYH11 Genetic Mutation; Bicuspid Aortic Valve Without Known Family History; Bicuspid Aortic Valve With Family History; Bicuspid Aortic Valve With Coarctation; Familial Thoracic Aortic Aneurysm and Dissections; Shprintzen-Goldberg Syndrome; Other Aneur/Diss of Thoracic Aorta Not Due to Trauma, <50yo; Other Congenital Heart Disease
Interventions: Observational study
URL: http://www.clinicaltrials.gov/ct2/show/NCT01322165

Title: Studies of Heritable Disorders of Connective Tissue

This study has been completed!
Conditions: Ehlers-Danlos Syndrome; Stickler Syndrome; Marfan Syndrome
Interventions: Observational study
URL: http://www.clinicaltrials.gov/ct2/show/NCT00270686

Title: IGF-I Stimulation of Collagen Synthesis in Ehlers-Danlos Patients

This study has been completed!
Conditions: Ehlers-Danlos Syndrome, Classic
Interventions: Drug: mecasermin; Drug: Saline
URL: http://www.clinicaltrials.gov/ct2/show/NCT01446783

Title: Non-Invasive Quantitative Imaging of Human Local Arterial Wall Elasticity Using Supersonic Shear Imaging (ULTRAFASTECHO)

This study has been completed!
Conditions: Healthy Volunteers; Vascular Ehlers Danlos Syndrome
Interventions: Other: SSI and SphygmoCor® evaluations
URL: http://www.clinicaltrials.gov/ct2/show/NCT01096264

Title: Riboflavin Corneal Crosslinking for Brittle Cornea Syndrome and Ehlers-Danlos Syndrome Type VI

Recruitment: Enrolling participants by invitation only
Conditions: Brittle Cornea Syndrome; Ehlers-Danlos Syndrome Type 6
Interventions: Drug: Riboflavin; Device: Kera-X
URL: http://www.clinicaltrials.gov/ct2/show/NCT01307527

Title: Vascular Fundus Changes in Patients With High Probability of Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Recruitment: The study is ongoing, but not recruiting participants.
Conditions: Ehlers-Danlos Syndrome; Multiple Sclerosis
Interventions: Observational study
URL: http://www.clinicaltrials.gov/ct2/show/NCT01356134

Title: National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC)

Recruitment: The study is ongoing, but not recruiting participants.
Conditions: Marfan Syndrome; Turner Syndrome; Ehlers-Danlos Syndrome; Loeys-Dietz Syndrome; FBN1, TGFBR1, TGFBR2, ACTA2 or MYH11 Genetic Mutation; Bicuspid Aortic Valve Without Known Family History; Bicuspid Aortic Valve With Family History; Bicuspid Aortic Valve With Coarctation; Familial Thoracic Aortic Aneurysm and Dissections; Shprintzen-Goldberg Syndrome; Other Aneur/Diss of Thoracic Aorta Not Due to Trauma, <50yo; Other Congenital Heart Disease
Interventions: Observational study
URL: http://www.clinicaltrials.gov/ct2/show/NCT01322165

Title: Studies of Heritable Disorders of Connective Tissue

This study has been completed!
Conditions: Ehlers-Danlos Syndrome; Stickler Syndrome; Marfan Syndrome
Interventions: Observational study
URL: http://www.clinicaltrials.gov/ct2/show/NCT00270686

Title: IGF-I Stimulation of Collagen Synthesis in Ehlers-Danlos Patients

This study has been completed!
Conditions: Ehlers-Danlos Syndrome, Classic
Interventions: Drug: mecasermin; Drug: Saline
URL: http://www.clinicaltrials.gov/ct2/show/NCT01446783

Title: Non-Invasive Quantitative Imaging of Human Local Arterial Wall Elasticity Using Supersonic Shear Imaging (ULTRAFASTECHO)

This study has been completed!
Conditions: Healthy Volunteers; Vascular Ehlers Danlos Syndrome
Interventions: Other: SSI and SphygmoCor® evaluations
URL: http://www.clinicaltrials.gov/ct2/show/NCT01096264