Hypohidrotic Ectodermal Dysplasia with Immune Deficiency, Osteopetrosis and Lymphoedema - Patient Associations

FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi
, toimisto@iholiitto.fi
Website: http://www.iholiitto.fi

ITALY

A.N.D.E. Associazione Nazionale Displasia Ectodermica
Via Cascina Fidelina, 19
20061 Carugate (MI)
Italia
Giulia Fedele Kleemann
segreteria@assoande.it
Website: http://www.assoande.it

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org

Website: http://www.lemalattierare.org

NETHERLAND

Ectodermal Dysplasia Netherlands
Aernout Drostkade 30
Gouda
The Netherlands
2802 TN
Website: http://www.ednl.webklik.nl

TURKEY

Ectodermal Dysplasia Group
University of Dicle, Faculty of Dentistry and Medicine
Diyarbakir
21280 Turkey
Izzet Yavuz
iyavuz@dicle.edu.tr
, izzetyavuz@hotmail.com
Website: http://www.ektodermaldisplazi.com

UNITED KINGDOM

Ectodermal Dysplasia Society
108 Charlton Lane
Cheltenham, Glos.
England
GL53 9EA
Diana Perry
Sue Atkins
diana@ectodermaldysplasia.org
Website: http://www.ectodermaldysplasia.org/