Naegeli-Syndrome - Patient Associations

AUSTRIA

Selbsthilfegruppe Ektodermale Dysplasie
Pantlitschkogasse 5
1230
WIEN
AUSTRIA
Ms Ulrike HOLZER
ulli.h@gmx.at

FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi
Website: http://www.iholiitto.fi/

FRANCE

AFDE
Association Française des Dysplasies Ectodermiques
3 Rue d'Alsace-Lorraine
92100 BOULOGNE
FRANCE
Ms Olivia NICLAS

GERMANY

ed-Selbsthilfegruppe Ektodermale Dysplasie e.V.
Landhausweg 3
72631
AICHTAL
GERMANY
Ms Andrea BURK
Burk-Aichtal@t-online.de

GREECE

Association of people with genetic disorders
Medical genetics, University of Athens, Aghia Sophia Children's hospital
TO MELLON - Association of people with genetic disorders
Makrinitsas 16, Abelokipoi
115 22 ATHENS
GREECE
Dr Helen FRYSSIRA
info@tomellon.com.gr

ITALY

A.N.D.E. Associazione Nazionale Displasia Ectodermica
Via Cascina Fidelina, 19
20061 Carugate (MI)
Italia
Giulia Fedele Kleemann
segreteria@assoande.it
Website: http://www.assoande.it/

POLAND

GEN-Association for children with genetic disorders
Okrezna 6 Krzyszkowo
62-090 ROKIETNICA
POLAND
Ms Hanna MACIEJEWSKA
gen@gen.org.pl

WSPOLNIE-Association for children with
rare genetic disorders and their families „Together“
Katedra Genetyki-Akademii Medycznejim. Piastow Slaskich
Akademii Medycznejim. Piastow Slaskich
Chalubinskiego 3
50-369 WROCLAW
POLAND
Dr Robert SMIGIEL
stowarzyszenie@wspolnie.org

ROMANIA

Centre for information about rare genetic disorders
29 Avram Iancu, etaj III
450143
ZALAU
ROMANIA
Ms Dorica DAN
doricad@yahoo.com

SPAIN

AADE
Asociación de Afectados por Displasia Ectodérmica
Calle Poeta Andrés Bolarín, 2, 3D
30011 MURCIA
SPAIN
Ms Gema CHICANO SAURA

SWEDEN

Swedish foundation for ectodermal dysplasia
STOCKHOLM
SWEDEN
Ms Jenny ERIKSSON

UNITED KINGDOM

Ectodermal Dysplasia Society
108 Charlton Lane
Cheltenham, Glos.
England
GL53 9EA
Ms Diana Perry
diana@ectodermaldysplasia.org
Website: http://www.ectodermaldysplasia.org/