Superficial Epidermolytic Ichthyosis - Patient Associations

AUSTRIA

Selbsthilfegruppe Ichthyosen-Verhornungsstörungen der Haut
Innrain 43
6020 Innsbruck
Austria
Wolfgang Bachler

BELGIUM

Ichthyosis Belgium npa
vestinglaan 12 - 2
2640 Anwerpen - Anvers - Antwerp
Belgium
Jean Devidts
ichtyosis@devidts.com
Website: www.devidts.com/ichthyosis

DENMARK

Iktyosisforeneingne i Danmark
Aertebjergvey 17
4660 St. Heddinge
Denmark
iktyosis@hotmail.com

FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi,
toimisto@iholiitto.fi
Website: www.iholiitto.fi

FRANCE

Association Nationale des Ichtyoses et Peaux Sèches Pathologiques, ANIPS
Les terrasses, 574 Avenue Maréchal Foch
83000 Toulon
France
Ms Marie Cécile VERLY

GERMANY

Ichthyosis Support Group Germany
Straße der Einheit 5d
15749 Mittenwalde Brusendorf
Germany
Barbara Kleinow
Geske Wehr
europe@ichthyose.de

Website: www.ichthyose.de

e n i - European Network for Ichthyosis e.V.
In den Dellen 21
51515 Kürten
Germany
e-n-i@gmx.de
Website: www.ichthyose.eu

GREECE

Association of peope with genetic disorders
Medical genetics, University of Athens,
Aghia Sophia Children's hospital
TO MELLON - Association of people with genetic disorders
Makrinitsas 16, Abelokipoi
115 22 Athens
Greece
Dr Helen Fryssira
info@tomellon.com.gr

ITALY

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
36057 Vicenza
Italy
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org

Website: www.lemalattierare.org

UNITI - Unione Italiana Ittiosi
Viale Vasco de Gama, 72
00121 Roma
Italiy
Flavio Minelli
flavio@ittiosi.it
Website: www.ittiosi.it

POLAND

GEN - Association for Children with Genetic Disorders
Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi
Okrezna 6 Krzyszkowo
62-090 Rokietnica
POLAND
Ms Hanna MACIEJEWSKA
gen@gen.org.pl

WSPOLNIE - Association for children with rare genetic disorders
and their families "Together"
Katedra Genetyki - Akademii Medycznej im. Piastow Slaskich
Akademii Medycznej im. Piastow Slaskich
Chalubinskiego 3
50-369 Wroclaw
POLAND
Dr Robert SMIGIEL
stowarzyszenie@wspolnie.org

SPAIN

Asociación Española de Ictiosis
Calle Docotr Pérez Feliu, 13
46014 Valencia
SPAIN
Mr Evanina MORCILLO MAKOW
info@ictiosis.org

SWEDEN

Iktyosföreningen
Swedish Ichthyosis Association
c/o Ganemo
Ganarpsvägen 335
Munka Ljungby
266 92
Sweden
Agneta Ganemo
ab.ganemo@lm.lrf.set
Website: www.iktyos.nu

Ikyosföreningen
Sturegatan 4c, Box 1386
17227 Sundyberg
SWEDEN
Ms Helena Reuterwall

SWITZERLAND

VIS - AIS - USI - Vereinigung Ichthyose Schweiz - Association Ichose Suisse - Unione Svizzera Ittiosi
Chemin de Joli-Site 6
1028 Preverenges
SWITZERLAND
Ms Annette STÜSSI-BRUNNER
Ms Bettina KANDE
ais@ichthose.ch

UNITED KINGDOM

Ichthyosis Support Group
PO Box 1404
Bagsho
GU22 2LS
UK
Liz Dale
isg@ichthyosis.org
.uk
Website: www.ichthyhosis.org.uk