Epithelial Adhesion - Patient Associations
AUSTRIA
DEBRA Austria
Am Heumarkt 27/1
1030 Wien
Austria
Rainer Riedl
rainer.riedl@debra-austria.org
Website: www.schmetterlingskinder.at, www.eb-house.org
BELGIUM
DEBRA Belgium
rue Piralewe 1
4600 Lanaye
Belgium
Ingrid Jageneau
info@debra-belgium.org
ingrid@debra-belgium.org
Website: www.debra-belgium.org
CROATIA
DEBRA Croatia
Prilaz Gjure Deželica 30
10 000 Zagreb
Croatia
Vlasta Zmazek
vlasta@debra-croatia.com
Website: www.debra.hr
CZECH REPUBLIC
Department of Pediatric Dermatology The First Pediatric Clinic, University Hospital Brno, Cernopolni 9
625 00 Brno
Czech Republic
FINLAND
Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi
FRANCE
c/o AG2R La Mondiale
16, La Canebière
BP 31866
13221 Marseille cedex 01
France
Matthieu BEYLER, president
contact@debra.fr
Website: http://www.debra.fr
DEBRA France (Dystrophique Épidermolyse Bulleuse - Recherche, Association)
c/o Mutuelle du Midi
16, La Canebière
BP 31866
13221 Marseille cedex 01
France
Guy Verdot, president
Mireille Nistasos, administrative secretary
mireille.nistasos@ag2rlamondiale.fr
Website : http://www.debra.fr
GERMANY
I.E.B.-DEBRA Germany
Mühlweg 23
Biedenkopf
Germany
D-35216
Netty Müller-Grosse
mueller-grosse@t-online.de
Website: www.ieb-debra.de
HUNGARY
DEBRA Hungary
Maria u 41
Budapest
Hungary
H-1085
Prof. Sarolta Kárpáti
Orsolya Mesitsne Varga
karsar@bor.sote.hu
mesitsorsi@freemail.hu
Website: www.debra.hu
IRELAND
DEBRA Ireland
La Touche House
1 Grove Road
Rathmines
Dublin 6
Ireland
Chairperson: Colm Darling
CEO: Jimmy Fearon; Correspondence: Suzanne Dowd
info@debraireland.org
Suzanne@debraireland.org
Website: www.debraireland.org
ITALY
DEBRA Italia Onlus-Associazione per la ricerca sull'Epidermolisi Bollosa Distrofica
Via P. Mascagni 152-00199; Ufficio Via Arno 96-00198 Roma
00198 Roma
Italia
Paola Zotti
paola.zotti@libero.it
Website: www.debraitalia.org
"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org
Website: www.lemalattierare.org
NORWAY
DEBRA Norway
Violveien 10D
Hakadal
Norway
1487
Phone +4745221884
Heidi Ellingsen Silseth
Website: www.debra.no
RUMANIA
DEBRA Rumania
Nicopole Street No 43-45
Brasov
Sanda Florian
sandaflorian.@yahoo.com
SWEDEN
Svenska Epidermolysis bullosa föreningen
Debra Sweden
Monica Wittboldt
Tvillinggatan 1 A
431 43 Mölndal
monica.wittboldt@glocalnet.net
Website: www.debra-sweden.org
SWITZERLAND
DEBRA Switzerland
Birkenweg 102
CH-3123 Belp
Tanja Pauli
Phone ++ 41 (0)31 879 14 88
Website: www.schmetterlingskinder.ch
THE NETHERLANDS
UNITED KINGDOM
DEBRA
Debra House, 13 Wellington Business Park, Dukes Ride
RG45 6LS Crowthorne
UK
Ben Merret
ben.merrett@debra.og.uk, debra@debra.org.uk
Website: www.debra.org.uk
EUROPE
Debra House, 13 Wellington Business Park, Dukes Ride
RG45 6LS Crowthorne
UK