Ehlers-Danlos Syndrome, Kyphoscoliotic Type - Patient Associations

AUSTRIA

Ehlers Danlos Syndrom Support Group
Sechsschimmelgasse 25/13
1090 Vienna
Austria
Hannes Tannich
wuermchen39@gmx.at

BELGIUM

Belgium EDS Support Group
Mrs Chris Aubry
eds@bindweefsel.be
www.bindweefsel.be

Groupe d'Entraide des syndromes d'Ehlers-Danlos
25 rue de la Motte
B-1399 Archennes
Mme Ute Costermans
jacques.costermans@swing.be

DENMARK

The Danish Ehlers-Danlos Society
Chairman: Lykke Rehder
Ellemosevej 50
DK-2900 Hellerup
lr@ehlers-danlos.dk
Webiste: www.ehlers-danlos.dk

FINLAND

The Finish Rheumatism Association
Iso Roobertinkatu 20 - 22 A
FIN-00120 Herìlsinki
Jaana Hirvonen
jaana.hirvonen@reumaliitto.fi

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
FIN-00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi, toimisto@iholiitto.fi
Website: www.iholiitto.fi

FRANCE

Ehlers Danlos Syndrome Association
67 rue Jules Lecesne
76600 Le Havre
France
Marie-Noëlle Gaveau-Glantin
marienoelgaveau@aol.com
Website: www.afsed.com

GERMANY

Deutsche Ehlers-Danlos Initiative e. V.
Grauthoffweg 78
D-33758 Schloss Holte-Stukenbrock
Johanna et Gilles Guénot
ogschlossholte@ehlers-danlos-initiative.de

IRELAND

Ehlers-Danlos Syndrome Support Group
24 Wendell Avenue
Portmarnock, Co Dublin
Betty et David Rea

ITALY

A.I.S.E.D. - Associazione Italiana per la Sindrome di Ehlers-Danlos
Dipartimento di Biochimica
Via Taramelli 3B
I-27100 Pavia
Sig.ra Maurizia Valli
malconn@unipv.it

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org
Website: www.lemalattierare.org

NORWAY

Leder Norsk Forening for Ehlers-Danlos Syndrome
Postboks 4568 Nydalen
NO-0404 Oslo
Norway
www.eds-foreningen.no

SPAIN

ASEDH
Pza Carme Monturiol n. 3, 4°-3°
08036 Barcelona
Spain
Beatriz Jiménez
asedh@asedh.org

SWEDEN

Ehlers-Danlos Sindrome Riksforbund
info@ehlers-danlos.se
www.ehlers-danlos.se

THE NETHERLANDS

V.E.D.
Stationsplein 6
3818 Le Amersfoort
President: Margrieth Veenhuizen
Jaap Smit
jrsmit@zonnet.nl

UNITED KINGDOM

Ehlers-Danlos Support Group
PO Box 337
Aldershot GU12 6LJ
United Kingdom
Libby Godden
director@ehlers-danlos.org
Website: www.ehlers-danlos.org