geneskin

Monilethrix - Patient Associations

FINLAND

Finnish central organisation for skin patients
Karjalankatu 2 B, 3rd floor
00520
HELSINKI
FINLAND
Mr Risto HEIKKINEN
harvinaiset.ihosairaudet@iholiitto.fi

GREECE

Association of people with genetic disorders
Medical genetics, University of Athens,
Aghia Sophia Children's hospital
TO MELLON-Association of people with genetic disorders
Makrinitsas 16, Abelokipoi
115 22 Athens
GREECE
Dr Helen Fryssira
info@tomellon.com.gr

POLAND

GEN - Association for Children with Genetic Disorders
Stowarzyszenie na Rze cz Dzieci z Zaburzeniami
Genetycznymi
Okrezna 6 Krzyszkowo
62-090 Rokietnica
POLAND
Ms Hanna MACIEJEWSKA

WSPOLNIE - Association for children with
rare genetic disorders and their
families "Together"
Katedra Genetyki-Akademii Medycznejim.
Piastow Slaskich
Akademii Medycznejim.
Piastow Slaskich
Chalubinskiego 3
50-369 Wroclaw
POLAND
Dr Robert SMIGIEL

ROMANIA

Centre for information about rare genetic disorders
29 Avram Iancu, etaj III
450143
ZALAU
ROMANIA
Ms Dorica DAN
doricad@yahoo.com

UNITED KINGDOM

URDDAD-Foundation
The Ultra Rare Disease,Disorders & Disabilities Foundation
Sydenham
BELFAST BT9 7AB
UNITED KINGDOM
Mr Terence HOEY
godferybrockgadd@urddad-foundation.org.uk

Genetic Disorders UK
GDUK - Genetic Disorders UK
199a Victoria Street
LONDON SW1E 5NE
UNITED KINGDOM
Ms Caroline HARDING
hello@gduk.org