geneskin

Netherton Syndrome - Patient Associations

BELGIUM

Ichthyosis Belgium npa
Vestinglaan 12 - 2
Antwerpen
Belgium
2640
Jean Devidts
ichthyosis@devidts.com
Website: http://www.devidts.com/ichthyosis

FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi
Website: www.iholiitto.fi

GERMANY

Ichthyosis Support Group Germany
Straße der Einheit 5d
Mittenwalde/Brusendorf
Germany
15749
Barbara Kleinow
Geske Wehr
europe@ichthyose.de
Website: www.ichthyose.de

e n i
European Network for Ichthyosis e. V.
In den Dellen 21
Germany
51515 Kürten
e-n-i@gmx.de
Website: www.ichthyose.eu

ITALY

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org
Website: www.lemalattierare.org

UNITI - Unione Italiana Ittiosi
Viale Vasco de Gama, 72
00121 Roma
Italia
Flavio Minelli
flavio@ittiosi.it
Website: www.ittiosi.it

SWEDEN

Iktyosföreningen/Swedish Ichthyosis Association
Box 1386, Landsvägen 50a
S-172 27 Sundbyberg
SWEDEN
Contact: Helene Reuterwall
helene.reuterwall@iktyos.se
Website: www.iktyos.se

UNITED KINGDOM

Ichthyosis Support Group
PO Box 1404
Bagshot
UK
GU22 2LS
Liz Dale
isg@ichthyosis.org.uk
Website: www.ichthyosis.org.uk