Pachyonychia Congenita - Patient Associations

INTERNATIONAL

Pachyonychia congenita project
2386 East Heritage Way, Suite B
Salt Lake City, UT 84109
info@pachyonychia.org
Website: www.pachyonychia.org

FINLAND

Finnish Central Organisation for Skin Patients
Karjalankatu 2 B, 3rd floor
00520 Helsinki
Finland
harvinaiset.ihosairaudet@iholiitto.fi, toimisto@iholiitto.fi
Website: www.iholiitto.fi

ITALY

"M. Baschirotto" Association for rare diseases (ONLUS)
via B. Bizio,1, Costozza di Longare
Vicenza
Italy
36057
Giuseppe Baschirotto
Anna Albarello
info@lemalattierare.org
Website: www.lemalattierare.org

GREECE

Association of people with genetic disorders
Medical genetics, University of Athens, Aghia Sophia Children's hospital
TO MELLON - Association of people with genetic disorders
Makrinitsas 16, Abelokipoi
115 22 ATHENS
GREECE
Dr Helen FRYSSIRA
info@tomellon.com.gr

POLAND

GEN-Association for Children with genetic disorders
Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi
Okrezna 6 Krzyszkowo
62-090 ROKIETNICA
POLAND
Ms Hanna MACIEJEWSKA
gen@gen.org.pl

WSPOLNIE-Association for children with rare genetic disorders and their families „Together“
Katedra Genetyki - Akademii Medycznej im. Piastow Slaskich
Akademii Medycznej im. Piastow Slaskich
Chalubinskiego 3
50-369 WROCLAW
POLAND
Dr Robert SMIGIEL
stowarzyszenie@wspolnie.org

ROMANIA

Centre for Information about Rare Genetic Disorders
29 Avram Iancu, etaj III
450143
ZALAU
ROMANIA
Ms Dorica DAN
doricad@yahoo.com

UNITED KINGDOM

URDDAD-Foundation
The Ultra Rare Disease,Disorders & Disabilities Foundation
Sydenham
BELFAST BT9 7AB
UNITED KINGDOM
Mr Terence HOEY
godferybrockqadd@urddad-foundation.org.uk

Genetic Disorders UK
GDUK - Genetic Disorders UK
199a Victoria Street
LONDON SW1E 5NE
UNITED KINGDOM
Ms Caroline HARDING
hello@gduk.org